• xray image of vp shunt in head
    Chronic Illness,  Intracranial Hypertension

    All About VP Shunt Surgery

    *** Disclaimer: I am not a doctor. I am not a medical professional. All medical information is based off of personal experience only. If you are experiencing a medical issue or emergency, please seek a health professional first and foremost. *** What is a VP Shunt? A VP Shunt is a medical device used to help divert excess spinal fluid from around the brain into the abdomen where it can be reabsorbed. To get a bit more technical, VP is short for “Ventriculo-Peritoneal”. The shunt is inserted into the “ventricles” or cavities of the brain where the CSF (cerebral-spinal fluid) is then transferred to the “peritoneal” (abdominal) region of the…

  • woman's spine bent over in pain grabbing head
    Chronic Illness,  Intracranial Hypertension

    What is Intracranial Hypertension – Pseudotumor Cerebri?

    (video below) Intracranial Hypertension is a rare neurological condition in which spinal fluid pressure increases around the brain and spinal cord, often times for no reason whatsoever. This condition also goes by the name pseudo-tumor cerebri, meaning “false brain tumor”, because the symptoms often mimic that of a brain tumor. Symptoms Include: Headache Fullness or pressure in head Nausea Vomiting Dizziness Balance Issues Back Pain Jaw Pain Neck stiffness & pain Whooshing noise in ears (Pulsatile Tinnitus) Auditory changes Ear Fullness Vision changes Pain when looking to the side Papilledema  (swelling of the optic nerve) Vision loss What It Feels Like: Like thick caulk is filling up your head and…

  • close up selective focus of fire with black background
    Spirit

    Dreaming of Hell

    The First Dream When I was younger, I had a dream that terrifyingly embedded itself into my mind for years to come. The dream began as normal as any dream can, until suddenly, everything turned pitch black. It was such an empty, hollow blackness, a never ending void with nothing able to be seen before you or around you. And from that desolate pit, I heard the whisper, “It’s too late.” It was hell. Without a doubt, I knew I had gone to hell. And while I knew and know that hell is far worse than that, it was enough for me. It’s too late. No second chances. No extra…

  • black and white photo of a young man wearing a beanie and jacket in the snow
    Addiction,  Spirit

    A Daily Prayer

    The following poem was written by my brother, Jason Vicknair. Less than a year later, he passed away due to a drug overdose. This would be one of the last poems he ever wrote: Lord, keep us safe and our loved ones well. Lord, bless this home and all who inside dwell. Lord, grant me the patience to wait for myself. Lord, grant me the endurance to keep my Bible off the shelf. Lord, grant me the diligence to follow Your path. Lord, grant me the knowledge to stay away from Your wrath. Lord, grant me humility to keep me from pride. Lord, grant me the strength to hang on…

  • black and white closeup of a white woman and a black man holding hands
    Spirit

    Searching the Heart

    Recently, our country was hit with the painful reminder that there is still so much hate residing within us that needs to be addressed. This hate is nothing new. Racism is nothing new. In fact, as time grows closer each day to the end of time altogether, we sadly cannot be surprised by this spirit of division attacking us. However, that doesn’t mean we have to condone it. It All Begins in the Heart Growing up on the outskirts of New Orleans, “The Melting Pot”,  my community was nothing but diverse in both color and culture. And though I am a white woman from a white family, I was thankfully…

  • black woman in a long green dress running through a grassy field
    Spirit

    If You Seek Justice, Seek God

    Recently, I began a Bible Study with a small group of women. Upon asking God where to begin, I was led to the book of Esther. At first, I felt it was unnecessary for us to read about a woman just because we were women. But as soon as I began my research on the book, I quickly understood why He chose Esther. Because believe it or not, the events of Esther are actually very similar to what we are going through today. Overwhelmed by the situation in the world, our Bible study began with discussing racism. As younger women, we couldn’t believe we were still dealing with the same…

  • woman with dark hair in a cranberry dress standing by a gate with plants surrounding
    Chronic Illness,  Spirit

    The Way, The Truth, & The Lyme

    The Testimony of Jessica Johnson  Creatively Transcribed by April Normand When I say Lyme Disease, what is the first thing you think of? Ticks, no doubt. Want to know what I think of? The inability to walk. The feeling of cement in my legs. Being completely unable to move my neck. Inflammation within and behind my eyes that makes it too painful to even see. Spine shattering, gut damaging, life changing chronic illness. That’s what I think of. My Story My name is Jessica Johnson. I was born and raised in Jacksonville, Florida, a place of beaches, campgrounds, military, and shrimping. Where small town living meets the big city. The…

  • close up of glass test tubes with lime green liquid
    Chronic Illness

    What is Lyme Disease?

    Lyme Disease is an infectious disease that can develop when a particular bacteria has invaded the human body. Causes There are many species of bacteria involved in Lyme Disease across the world, but the most common one is known as borrelia burgdorferi. When a tick infected with the Lyme bacteria bites a human, that bacteria can be transmitted into the bloodstream. Although more research is needed in terms of transmission, it is important to note that this bacteria has also been found in other insects such as mosquitoes, fleas, deer flies, spiders, and horse flies. Though Lyme Disease has not been proven to be contagious, it can be sexually transmitted…

  • two greyscale images of young woman side by side staring straight ahead
    Spirit,  Writer's Life

    What I Learned in One Year

    Well, it has officially been one year since the launch of Weather in April, and what an experience it has been! It truly is amazing how God works. In the beginning of my diagnosis, I felt like the last person on earth. Little did I know what world was really out there – a world of others who feel what I feel. See what I see. Experience the same life I do but only with a different lens. It is almost as though I have learned more in this past year than I have throughout this entire sickness. And I don’t think that would be the case had I not…

  • girl in white and black striped shirt lying face flat on bed with blonde hair covering face
    Body,  Chronic Illness

    Eight Survival Tips for the Isolated, by the Isolated

    I have to say, this time of quarantine has honestly not been so bad. Because for the most part, nothing for me has changed. February 2018, I became too sick to continue going to work. By March, I no longer even had a vehicle. It was just me and my baby home every day all day. And that’s how it’s been nearly every day for the past two years. Now given, I was often too sick to even get out of bed. And yes, many days I had someone there to help me. But it never changed the fact that we were always home and rarely venturing out. So when…