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  • My Story
  • About
    • What Is Intracranial Hypertension?
  • Contact

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  • Intracranial Hypertension
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  • Writer's Life
  • a woman from behind holding her hands up worshipping with a stage of lights blurred out in front of her
    Chronic Illness,  Spirit

    What Must I Do?

    September 3, 2024 /

    Here I was again. It was Sunday; I was at church; and I knew good and well that I had been highly symptomatic as of late...

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    IV bag of fluids hanging from stand

    The Broken Body

    May 22, 2019
    hands holding white and yellow flower by green and yellow bush

    Embracing the Thorn in My Flesh

    April 20, 2022
    young woman with hat standing next to a white picket fence staring off to the side

    Labeled Disabled

    November 6, 2019
  • exam room table at doctors office
    Chronic Illness,  Intracranial Hypertension

    My Auditory & Vestibular Experience (Continued)

    September 3, 2024 /

    In previous posts, we’ve discussed how my auditory and vestibular symptoms came to be as well as the emotional and mental toll it...

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    young woman with hat standing next to a white picket fence staring off to the side

    Labeled Disabled

    November 6, 2019
    girl with shaved head in hospital bed making a peace sign with hand and holding phone

    My Shunt Surgery – Healing

    September 23, 2020
    greyscale of longhaired woman covering up mouth with hand and sweater

    What Are You Afraid Of?

    December 18, 2019
  • a sculpture of a head with the brain exposed and labeled in a vintage style
    Chronic Illness,  Intracranial Hypertension

    The Emotional & Mental Toll of Chronic Illness

    September 3, 2024 /

    To help bring some awareness as to what it’s like living with a chronic illness (and a rare disease at that), let me just start off by...

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    Khaki duffel bag on the floor next to a white chair

    What to Pack in Your Hospital Bag

    June 26, 2019

    My Shunt Surgery

    September 2, 2020
    close up of doctor crossing arms holding a red stethascope

    Health Care Frustrations – How You Can Help

    October 30, 2019
  • unfocused black and white blurry photo of people in a room
    Chronic Illness,  Intracranial Hypertension

    My IH Journey – The Vestibular Experience

    September 3, 2024 /

    Obviously, being told that there’s not much that can be done on a doctor’s end isn’t very motivational for one to...

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    back of woman's head with messy blonde bun wearing oversized headphones and a black sweater

    My IH Journey – The Auditory Experience

    September 3, 2024

    The Truth About Medical Trauma

    December 16, 2020
    teal and green awareness ribbon

    Living with Intracranial Hypertension

    September 9, 2020
  • back of woman's head with messy blonde bun wearing oversized headphones and a black sweater
    Chronic Illness,  Intracranial Hypertension

    My IH Journey – The Auditory Experience

    September 3, 2024 /

    It’s hard to tell what exactly was happening the first few months following my son’s birth in January of 2017, but I can pretty much narrow...

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    girl in white and black striped shirt lying face flat on bed with blonde hair covering face

    Eight Survival Tips for the Isolated, by the Isolated

    March 25, 2020

    By His Stripes, I Am Healed

    November 25, 2020
    close up of woman's light brown eyes

    A Strange Way of Healing

    March 24, 2021
  • flatlay of a pink journal on top of a white marbled notebook with two colored pencils
    Chronic Illness,  Intracranial Hypertension

    My IH Journey – Series Intro

    September 3, 2024 /

    Through Weather in April, I try my best to provide informative resources for those struggling with their health. I also strive to...

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    xray image of vp shunt in head

    All About VP Shunt Surgery

    September 2, 2020
    husband standing next to wife in hospital bed

    In Sickness & In Health

    June 12, 2019
    unfocused black and white blurry photo of people in a room

    My IH Journey – The Vestibular Experience

    September 3, 2024
  • side greyscale profile of a woman with her hair up and a nature picture of a river, trees, mountains, and sky inside of her head draining down her neck
    Intracranial Hypertension

    My Shunt Surgery – Revision

    June 14, 2024 /

    In June of 2018, I had my first brain surgery for the placement of a VP shunt. While I have no regrets having this surgery, I ...

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    unfocused surgical room of doctors

    Surgical Options for Intracranial Hypertension

    June 14, 2021
    young woman post-surgery sitting and smiling with a shaved head

    My Shunt Surgery – Recovery

    September 9, 2020
    teal and green awareness ribbon

    All About Intracranial Hypertension

    September 4, 2019
  • a plastic model of a brain inside of a clear glass head sculpture on an orange background
    Intracranial Hypertension

    More About Shunts – Adjustments & Revisions

    June 14, 2024 /

    I wish I could say that once a shunt is in, life becomes normal again and all symptoms become a distant memory. While that can be true, and...

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    teal and green awareness ribbon

    Living with Intracranial Hypertension

    September 9, 2020
    close up of a blue and green capsule surrounded by long white tablets

    Medication Options for Intracranial Hypertension

    February 23, 2021
    side greyscale profile of a woman with her hair up and a nature picture of a river, trees, mountains, and sky inside of her head draining down her neck

    My Shunt Surgery – Revision

    June 14, 2024
  • girl with two braids standing in front of a colorful graffiti wall of flowers
    Chronic Illness,  Spirit

    The Tapestry of Healing

    July 25, 2022 /

    I spent approximately seven months trying to find a doctor who would believe something was wrong with me. It took ten more months for me to no longer be questioned by the medical community, and still over another year to convince the federal government that I was sick enough to be disabled. After almost three years of fighting for my health, I was finally free to rest, recover, and heal. Except I couldn’t. Not fully at least. You spend almost three years trying to convince the world that something is wrong and see how easy it is to stop. My mind had become used to a constant repeat, reciting my…

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    hands pulling on nitrile gloves

    What to Expect During Your First Spinal Tap

    April 20, 2022
    streetlight at night

    Sleepless Nights

    July 24, 2019
    husband standing next to wife in hospital bed

    In Sickness & In Health

    June 12, 2019
  • close up of brown and blue iris and pupil in eye
    Intracranial Hypertension

    Papilledema & Intracranial Hypertension

    May 6, 2022 /

     *Note: I am not a medical professional. All information provided is from personal experience and personal research. If you are experiencing a medical condition, please seek a medical professional first and foremost. (Read Full Disclaimer Here) What is Papilledema? Papilledema is a visual condition where there is swelling of the optic nerve(s). While Papilledema can be secondary to a few conditions (brain tumor, brain hemorrhage, etc), I will be primarily speaking of it in relation to Intracranial Hypertension. When spinal fluid levels increase outside of a normal range (Intracranial Hypertension), it can apply a significant amount of pressure to all surrounding areas. This includes the optic nerves of the eyes,…

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    young woman post-surgery sitting and smiling with a shaved head

    My Shunt Surgery – Recovery

    September 9, 2020
    man covering the eyes of a woman sitting

    Not by Sight

    November 13, 2019
    streetlight at night

    Sleepless Nights

    July 24, 2019
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  • What Must I Do?
  • My Auditory & Vestibular Experience (Continued)
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