• astronaut on blurred nowy background lookinng up through helmet
    Intracranial Hypertension

    Gravity & Its Bizarre Effect on Spinal Fluid

    Did you know that two-thirds of astronauts who are in space for a lengthy amount of time come home only to report vision problems such as papilledema? Why? Because spinal fluid is very positional. And gravity – or lack thereof – plays a crucial role in keeping levels balanced. “On Earth, this spinal fluid system is designed to accommodate changes whether a person is sitting, standing or lying down. But in space, ‘the system is confused by the lack of the posture-related pressure changes,’” ¹ My Experience When I first developed a spinal fluid leak, the tell-tale sign for my doctor was the fact that my pain was relieved when…

  • Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery

    June 7, 2018 I laid on my side on the ER bed for the fifth time that year. My husband sat across from me. The anesthesiologist sat behind me. My pressure had once again been uncontrollable, and all medications had failed. It was time for yet another spinal tap. I honestly didn’t even care anymore. None of this was new, and nothing could possibly feel worse than what I was already feeling. I just wanted relief. As the physician inserted that 3 ½ inch needle, I did my best to breathe and pray, waiting for her to announce the opening pressure. Instead, she grabbed the extension. The next sound within…

  • xray image of vp shunt in head
    Chronic Illness,  Intracranial Hypertension

    All About VP Shunt Surgery

    *** Disclaimer: I am not a doctor. I am not a medical professional. All medical information is based off of personal experience only. If you are experiencing a medical issue or emergency, please seek a health professional first and foremost. *** What is a VP Shunt? A VP Shunt is a medical device used to help divert excess spinal fluid from around the brain into the abdomen where it can be reabsorbed. To get a bit more technical, VP is short for “Ventriculo-Peritoneal”. The shunt is inserted into the “ventricles” or cavities of the brain where the CSF (cerebral-spinal fluid) is then transferred to the “peritoneal” (abdominal) region of the…

  • woman's spine bent over in pain grabbing head
    Chronic Illness,  Intracranial Hypertension

    What is Intracranial Hypertension – Pseudotumor Cerebri?

    (video below) Intracranial Hypertension is a rare neurological condition in which spinal fluid pressure increases around the brain and spinal cord, often times for no reason whatsoever. This condition also goes by the name pseudo-tumor cerebri, meaning “false brain tumor”, because the symptoms often mimic that of a brain tumor. Symptoms Include: Headache Fullness or pressure in head Nausea Vomiting Dizziness Balance Issues Back Pain Jaw Pain Neck stiffness & pain Whooshing noise in ears (Pulsatile Tinnitus) Auditory changes Ear Fullness Vision changes Pain when looking to the side Papilledema  (swelling of the optic nerve) Vision loss What It Feels Like: Like thick caulk is filling up your head and…