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What Must I Do?
Here I was again. It was Sunday; I was at church; and I knew good and well that I had been highly symptomatic as of late...
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My Auditory & Vestibular Experience (Continued)
In previous posts, we’ve discussed how my auditory and vestibular symptoms came to be as well as the emotional and mental toll it...
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The Emotional & Mental Toll of Chronic Illness
To help bring some awareness as to what it’s like living with a chronic illness (and a rare disease at that), let me just start off by...
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My IH Journey – The Vestibular Experience
Obviously, being told that there’s not much that can be done on a doctor’s end isn’t very motivational for one to...
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My IH Journey – The Auditory Experience
It’s hard to tell what exactly was happening the first few months following my son’s birth in January of 2017, but I can pretty much narrow...
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My IH Journey – Series Intro
Through Weather in April, I try my best to provide informative resources for those struggling with their health. I also strive to...
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The Tapestry of Healing
I spent approximately seven months trying to find a doctor who would believe something was wrong with me. It took ten more months for me to no longer be questioned by the medical community, and still over another year to convince the federal government that I was sick enough to be disabled. After almost three years of fighting for my health, I was finally free to rest, recover, and heal. Except I couldn’t. Not fully at least. You spend almost three years trying to convince the world that something is wrong and see how easy it is to stop. My mind had become used to a constant repeat, reciting my…
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Papilledema & Intracranial Hypertension
*Note: I am not a medical professional. All information provided is from personal experience and personal research. If you are experiencing a medical condition, please seek a medical professional first and foremost. (Read Full Disclaimer Here) What is Papilledema? Papilledema is a visual condition where there is swelling of the optic nerve(s). While Papilledema can be secondary to a few conditions (brain tumor, brain hemorrhage, etc), I will be primarily speaking of it in relation to Intracranial Hypertension. When spinal fluid levels increase outside of a normal range (Intracranial Hypertension), it can apply a significant amount of pressure to all surrounding areas. This includes the optic nerves of the eyes,…
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What to Expect During Your First Spinal Tap
*** Disclaimers: The following information is based off of my own personal experience and research. I am not a medical professional. If you are experiencing a medical issue, please seek a medical professional first and foremost. Also note that each patient and doctor is different, and experiences can vary. Read full disclaimer page here. *** Expecting your first spinal tap? While the fear and concern can be understandable, we hope this post can shed some light on the subject and provide you with the answers to some of your questions. Our goal is to help make this whole experience much less terrifying. But before getting into the Q&A, let’s break…
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Top Triggers for Intracranial Hypertension
It’s amazing how the slightest change can throw off your body’s natural balance. Sometimes, it isn’t so much what you do but what you don’t do. Everyone will experience different triggers that throw things off and cause symptoms to flare. In this post, we will be going over some of the most common triggers for Intracranial Hypertension. It is important that you do not let this list intimidate you. Even in sharing the same condition, we may not all experience it the same way. We are all unique. Learn your own body and listen to it. You may be pleasantly surprised, or you may discover some boundaries to respect. Either…
