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    • What Is Intracranial Hypertension?
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  • side greyscale profile of a woman with her hair up and a nature picture of a river, trees, mountains, and sky inside of her head draining down her neck
    Intracranial Hypertension

    My Shunt Surgery – Revision

    June 14, 2024 /

    In June of 2018, I had my first brain surgery for the placement of a VP shunt. While I have no regrets having this surgery, I ...

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    Living with Intracranial Hypertension

    September 9, 2020
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    Gravity & Its Bizarre Effect on Spinal Fluid

    March 25, 2021
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    My IH Journey – The Auditory Experience

    September 3, 2024
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    Chronic Illness,  Spirit

    Count It All Joy

    July 27, 2021 /

    Earlier this month, I had my second brain surgery. I’ll save the details for another post, but overall it went very well. One might even go as far as to say it was successful – I haven’t had any high pressure symptoms since. The recovery process on the other hand was a different story. While on the surface, all is technically going well, there’s still so much more to recovery that never seems to be seen or heard. Take the post-surgery depression for example. In all honesty, I don’t even want to call it that because I know how much worse it could truly be. There is just no doubt…

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    My Shunt Surgery – Recovery

    September 9, 2020
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    The Tapestry of Healing

    July 25, 2022
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    Sleepless Nights

    July 24, 2019
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    Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery – Healing

    September 23, 2020 /

    Apparently when my neurosurgery team told me, “If you feel anything at all, let us know.” They meant, “It can take even eight weeks before your body adjusts to the shunt.” So by three weeks post-surgery, I was back at the hospital once again begging for relief. As I stood hunched against the corner of the elevator trying to stretch out the pressure, who do you think was to enter the elevator that Friday morning but my neurologist – my God-sent angel – the only one who could ever convince my neurosurgeons to help me. And despite ridiculous feuds with my neurosurgery team that day, my shunt was adjusted and…

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    Don’t Worry about Tomorrow

    June 5, 2019
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    My IH Journey – Series Intro

    September 3, 2024
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    A Strange Way of Healing

    March 24, 2021
  • young woman post-surgery sitting and smiling with a shaved head
    Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery – Recovery

    September 9, 2020 /

    I remember the moment I woke up in recovery and was told I just had shunt surgery. Part of me felt like I was still in and out of consciousness in the ER. Part of me thought I had passed out from the pain, and they had performed an emergency shunt surgery. Within a few minutes though, my husband and his sister were at my side, and I began to remember that it was all planned. Nurses came by to take bedside X-rays, and I rested, soaking in the new information that was now a part of my life: I had a shunt. I had a medical device inside of…

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    Have You Tried…

    December 16, 2020
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    What to Pack in Your Hospital Bag

    June 26, 2019
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    The Five Lies of Disability – Breaking the Stigma

    November 6, 2019

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  • What Must I Do?
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