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    • What Is Intracranial Hypertension?
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    Chronic Illness,  Intracranial Hypertension

    My Auditory & Vestibular Experience (Continued)

    September 3, 2024 /

    In previous posts, we’ve discussed how my auditory and vestibular symptoms came to be as well as the emotional and mental toll it...

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    My Shunt Surgery – Recovery

    September 9, 2020
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    What Must I Do?

    September 3, 2024
    young woman with hat standing next to a white picket fence staring off to the side

    Labeled Disabled

    November 6, 2019
  • unfocused black and white blurry photo of people in a room
    Chronic Illness,  Intracranial Hypertension

    My IH Journey – The Vestibular Experience

    September 3, 2024 /

    Obviously, being told that there’s not much that can be done on a doctor’s end isn’t very motivational for one to...

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    woman kneeling at the side of a bed with her head on the mattress

    A Day in the Life of Chronic Illness

    July 31, 2019

    By His Stripes, I Am Healed

    November 25, 2020
    girl with shaved head in hospital bed making a peace sign with hand and holding phone

    My Shunt Surgery – Healing

    September 23, 2020
  • back of woman's head with messy blonde bun wearing oversized headphones and a black sweater
    Chronic Illness,  Intracranial Hypertension

    My IH Journey – The Auditory Experience

    September 3, 2024 /

    It’s hard to tell what exactly was happening the first few months following my son’s birth in January of 2017, but I can pretty much narrow...

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    girl with two braids standing in front of a colorful graffiti wall of flowers

    The Tapestry of Healing

    July 25, 2022
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    How I’ve Healed

    September 15, 2025
    mother holding newborn baby

    Postpartum Headaches & Backpain… Sound Familiar?

    May 1, 2019
  • hands pulling on nitrile gloves
    Chronic Illness,  Intracranial Hypertension

    What to Expect During Your First Spinal Tap

    April 20, 2022 /

     *** Disclaimers: The following information is based off of my own personal experience and research. I am not a medical professional. If you are experiencing a medical issue, please seek a medical professional first and foremost. Also note that each patient and doctor is different, and experiences can vary. Read full disclaimer page here. *** Expecting your first spinal tap? While the fear and concern can be understandable, we hope this post can shed some light on the subject and provide you with the answers to some of your questions. Our goal is to help make this whole experience much less terrifying. But before getting into the Q&A, let’s break…

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    Don’t Worry about Tomorrow

    June 5, 2019
    greyscale of back of womans head and shoulders hunched over

    Depression

    December 18, 2019
    back of woman's head lying on side with dark hair and earring

    The Auditory Symptoms of Intracranial Hypertension

    January 7, 2021
  • astronaut on blurred nowy background lookinng up through helmet
    Intracranial Hypertension

    Gravity & Its Bizarre Effect on Spinal Fluid

    March 25, 2021 /

    Did you know that two-thirds of astronauts who are in space for a lengthy amount of time come home only to report vision problems such as papilledema? Why? Because spinal fluid is very positional. And gravity – or lack thereof – plays a crucial role in keeping levels balanced. “On Earth, this spinal fluid system is designed to accommodate changes whether a person is sitting, standing or lying down. But in space, ‘the system is confused by the lack of the posture-related pressure changes,’” ¹ My Experience When I first developed a spinal fluid leak, the tell-tale sign for my doctor was the fact that my pain was relieved when…

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    hands pulling on nitrile gloves

    What to Expect During Your First Spinal Tap

    April 20, 2022
    teal and green awareness ribbon

    Living with Intracranial Hypertension

    September 9, 2020
    unfocused surgical room of doctors

    Surgical Options for Intracranial Hypertension

    June 14, 2021
  • husband standing next to wife in hospital bed
    Chronic Illness

    In Sickness & In Health

    June 12, 2019 /

    Do you know the scenes in movies where the person is being rushed through the hospital, and their loved one arrives just in time to find them? This is the exact image of what I remember in between my neurologist visit and passing out in the wheelchair on the way to the ER. My husband was there right when I needed him most. I might have been half conscious from the pain, but I will never forget how much love and concern he showed me through those days in the hospital. His support in helping me breathe and cope with every increase of pressure was enough to make me think…

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    The Tapestry of Healing

    July 25, 2022

    My Shunt Surgery

    September 2, 2020
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    What to Pack in Your Hospital Bag

    June 26, 2019
  • IV bag of fluids hanging from stand
    Chronic Illness

    The Broken Body

    May 22, 2019 /

    Do you remember when your body broke? I do. Thursday, January 26, 2017. 9:30 am. It was the day I had my first child. It was the moment I had the epidural that went too far. Sure, that’s a common occurrence. Countless women experience it. The needle penetrates too far into the dura that surrounds the spinal cord and causes spinal fluid to leak out from around your brain. Excruciating headaches ensue. Sometimes the body heals itself before the new mother even notices. Other times, the skull crushing pain lingers for weeks or even months afterwards. The good news is doctors can fix this. All they have to do is…

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    Why Weight Loss Matters

    October 23, 2019
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    What is Intracranial Hypertension – Pseudotumor Cerebri?

    September 1, 2020
    young woman post-surgery sitting and smiling with a shaved head

    My Shunt Surgery – Recovery

    September 9, 2020
  • mother holding newborn baby
    Chronic Illness

    Postpartum Headaches & Backpain… Sound Familiar?

    May 1, 2019 /

    Had a baby and now experiencing symptoms you’ve never felt before? Believe me when I say there are a lot more women like you than you think! In January 2017, I gave birth to my first child. I had been healthy for 25 years prior. My pregnancy was uncomplicated and full term. My labor and delivery were brief and easy. But I didn’t know until four days later that there had been an accident with the epidural. While still in the hospital, I began experiencing headaches, something I had never dealt with much before. Upon arriving home, they were so excruciating, I couldn’t even think straight. My gynecologist instructed me…

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    Labeled Disabled

    November 6, 2019
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    Calling In Sick

    May 29, 2019
    close up of a handicapped parking space

    The Five Lies of Disability – Breaking the Stigma

    November 6, 2019

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