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    • What Is Intracranial Hypertension?
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    Chronic Illness,  Intracranial Hypertension

    My Auditory & Vestibular Experience (Continued)

    September 3, 2024 /

    In previous posts, we’ve discussed how my auditory and vestibular symptoms came to be as well as the emotional and mental toll it...

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    All About VP Shunt Surgery

    September 2, 2020
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    Labeled Disabled

    November 6, 2019
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    Not by Sight

    November 13, 2019
  • unfocused black and white blurry photo of people in a room
    Chronic Illness,  Intracranial Hypertension

    My IH Journey – The Vestibular Experience

    September 3, 2024 /

    Obviously, being told that there’s not much that can be done on a doctor’s end isn’t very motivational for one to...

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    A Strange Way of Healing

    March 24, 2021

    The Truth About Medical Trauma

    December 16, 2020
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    The Emotional & Mental Toll of Chronic Illness

    September 3, 2024
  • back of woman's head with messy blonde bun wearing oversized headphones and a black sweater
    Chronic Illness,  Intracranial Hypertension

    My IH Journey – The Auditory Experience

    September 3, 2024 /

    It’s hard to tell what exactly was happening the first few months following my son’s birth in January of 2017, but I can pretty much narrow...

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    Health Care Frustrations – How You Can Help

    October 30, 2019
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    Eight Survival Tips for the Isolated, by the Isolated

    March 25, 2020
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    Embracing the Thorn in My Flesh

    April 20, 2022
  • hands pulling on nitrile gloves
    Chronic Illness,  Intracranial Hypertension

    What to Expect During Your First Spinal Tap

    April 20, 2022 /

     *** Disclaimers: The following information is based off of my own personal experience and research. I am not a medical professional. If you are experiencing a medical issue, please seek a medical professional first and foremost. Also note that each patient and doctor is different, and experiences can vary. Read full disclaimer page here. *** Expecting your first spinal tap? While the fear and concern can be understandable, we hope this post can shed some light on the subject and provide you with the answers to some of your questions. Our goal is to help make this whole experience much less terrifying. But before getting into the Q&A, let’s break…

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    back of woman's head lying on side with dark hair and earring

    The Auditory Symptoms of Intracranial Hypertension

    January 7, 2021
    top of a white hospital building with black windows and blue skies

    Hospital Tips

    June 19, 2019
    close up of doctor crossing arms holding a red stethascope

    Health Care Frustrations – How You Can Help

    October 30, 2019
  • astronaut on blurred nowy background lookinng up through helmet
    Intracranial Hypertension

    Gravity & Its Bizarre Effect on Spinal Fluid

    March 25, 2021 /

    Did you know that two-thirds of astronauts who are in space for a lengthy amount of time come home only to report vision problems such as papilledema? Why? Because spinal fluid is very positional. And gravity – or lack thereof – plays a crucial role in keeping levels balanced. “On Earth, this spinal fluid system is designed to accommodate changes whether a person is sitting, standing or lying down. But in space, ‘the system is confused by the lack of the posture-related pressure changes,’” ¹ My Experience When I first developed a spinal fluid leak, the tell-tale sign for my doctor was the fact that my pain was relieved when…

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    Natural Remedies for Intracranial Hypertension

    April 29, 2021
    medical angiogram venogram image scan of veins in head and brain

    Stenting for Intracranial Hypertension

    June 14, 2021
    dark photo of woman with black hair putting hand against forehead with eyes closed

    Top Triggers for Intracranial Hypertension

    September 15, 2021
  • husband standing next to wife in hospital bed
    Chronic Illness

    In Sickness & In Health

    June 12, 2019 /

    Do you know the scenes in movies where the person is being rushed through the hospital, and their loved one arrives just in time to find them? This is the exact image of what I remember in between my neurologist visit and passing out in the wheelchair on the way to the ER. My husband was there right when I needed him most. I might have been half conscious from the pain, but I will never forget how much love and concern he showed me through those days in the hospital. His support in helping me breathe and cope with every increase of pressure was enough to make me think…

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    Sleepless Nights

    July 24, 2019
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    My Shunt Surgery – Recovery

    September 9, 2020
    minimalist white desk with modern chair facing a white wall

    Where to Begin

    October 30, 2019
  • IV bag of fluids hanging from stand
    Chronic Illness

    The Broken Body

    May 22, 2019 /

    Do you remember when your body broke? I do. Thursday, January 26, 2017. 9:30 am. It was the day I had my first child. It was the moment I had the epidural that went too far. Sure, that’s a common occurrence. Countless women experience it. The needle penetrates too far into the dura that surrounds the spinal cord and causes spinal fluid to leak out from around your brain. Excruciating headaches ensue. Sometimes the body heals itself before the new mother even notices. Other times, the skull crushing pain lingers for weeks or even months afterwards. The good news is doctors can fix this. All they have to do is…

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    All About Intracranial Hypertension

    September 4, 2019
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    Count It All Joy

    July 27, 2021
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    Labeled Disabled

    November 6, 2019
  • mother holding newborn baby
    Chronic Illness

    Postpartum Headaches & Backpain… Sound Familiar?

    May 1, 2019 /

    Had a baby and now experiencing symptoms you’ve never felt before? Believe me when I say there are a lot more women like you than you think! In January 2017, I gave birth to my first child. I had been healthy for 25 years prior. My pregnancy was uncomplicated and full term. My labor and delivery were brief and easy. But I didn’t know until four days later that there had been an accident with the epidural. While still in the hospital, I began experiencing headaches, something I had never dealt with much before. Upon arriving home, they were so excruciating, I couldn’t even think straight. My gynecologist instructed me…

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    What We Wish You Knew

    October 19, 2020
    IV bag of fluids hanging from stand

    The Broken Body

    May 22, 2019

    By His Stripes, I Am Healed

    November 25, 2020

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  • What Must I Do?
  • My Auditory & Vestibular Experience (Continued)
  • The Emotional & Mental Toll of Chronic Illness

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