• hands pulling on nitrile gloves
    Chronic Illness,  Intracranial Hypertension

    What to Expect During Your First Spinal Tap

     *** Disclaimers: The following information is based off of my own personal experience and research. I am not a medical professional. If you are experiencing a medical issue, please seek a medical professional first and foremost. Also note that each patient and doctor is different, and experiences can vary. Read full disclaimer page here. *** Expecting your first spinal tap? While the fear and concern can be understandable, we hope this post can shed some light on the subject and provide you with the answers to some of your questions. Our goal is to help make this whole experience much less terrifying. But before getting into the Q&A, let’s break…

  • astronaut on blurred nowy background lookinng up through helmet
    Intracranial Hypertension

    Gravity & Its Bizarre Effect on Spinal Fluid

    Did you know that two-thirds of astronauts who are in space for a lengthy amount of time come home only to report vision problems such as papilledema? Why? Because spinal fluid is very positional. And gravity – or lack thereof – plays a crucial role in keeping levels balanced. “On Earth, this spinal fluid system is designed to accommodate changes whether a person is sitting, standing or lying down. But in space, ‘the system is confused by the lack of the posture-related pressure changes,’” ¹ My Experience When I first developed a spinal fluid leak, the tell-tale sign for my doctor was the fact that my pain was relieved when…

  • girl with shaved head in hospital bed making a peace sign with hand and holding phone
    Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery – Healing

    Apparently when my neurosurgery team told me, “If you feel anything at all, let us know.” They meant, “It can take even eight weeks before your body adjusts to the shunt.” So by three weeks post-surgery, I was back at the hospital once again begging for relief. As I stood hunched against the corner of the elevator trying to stretch out the pressure, who do you think was to enter the elevator that Friday morning but my neurologist – my God-sent angel – the only one who could ever convince my neurosurgeons to help me. And despite ridiculous feuds with my neurosurgery team that day, my shunt was adjusted and…

  • young woman post-surgery sitting and smiling with a shaved head
    Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery – Recovery

    I remember the moment I woke up in recovery and was told I just had shunt surgery. Part of me felt like I was still in and out of consciousness in the ER. Part of me thought I had passed out from the pain, and they had performed an emergency shunt surgery. Within a few minutes though, my husband and his sister were at my side, and I began to remember that it was all planned. Nurses came by to take bedside X-rays, and I rested, soaking in the new information that was now a part of my life: I had a shunt. I had a medical device inside of…

  • xray image of vp shunt in head
    Chronic Illness,  Intracranial Hypertension

    All About VP Shunt Surgery

    *** Disclaimer: I am not a doctor. I am not a medical professional. All medical information is based off of personal experience only. If you are experiencing a medical issue or emergency, please seek a health professional first and foremost. *** What is a VP Shunt? A VP Shunt is a medical device used to help divert excess spinal fluid from around the brain into the abdomen where it can be reabsorbed. To get a bit more technical, VP is short for “Ventriculo-Peritoneal”. The shunt is inserted into the “ventricles” or cavities of the brain where the CSF (cerebral-spinal fluid) is then transferred to the “peritoneal” (abdominal) region of the…

  • close up of glass test tubes with lime green liquid
    Chronic Illness

    What is Lyme Disease?

    Lyme Disease is an infectious disease that can develop when a particular bacteria has invaded the human body. Causes There are many species of bacteria involved in Lyme Disease across the world, but the most common one is known as borrelia burgdorferi. When a tick infected with the Lyme bacteria bites a human, that bacteria can be transmitted into the bloodstream. Although more research is needed in terms of transmission, it is important to note that this bacteria has also been found in other insects such as mosquitoes, fleas, deer flies, spiders, and horse flies. Though Lyme Disease has not been proven to be contagious, it can be sexually transmitted…

  • greyscale of longhaired woman covering up mouth with hand and sweater
    Chronic Illness,  Spirit

    What Are You Afraid Of?

    It’s funny. I was the child always terrified of going to the doctor. I was the one who built up major anxiety over visiting the dentist or hospital for a checkup. Who would have thought I would one day have no choice but to overcome my fears. While I thought pregnancy had cleared me of most fear and humility, I was quickly proven wrong. Although both my epidural and blood patch had caused little pain, I was beyond terrified when it came to getting my first spinal tap. As symptoms progressed that summer of 2017, I knew the inevitable was coming, and no amount of mental prepping could relieve my…

  • young woman with hat standing next to a white picket fence staring off to the side
    Chronic Illness

    Labeled Disabled

    Recently, I received some wonderful news. I have officially been declared disabled. Wait, what? Come on. Let’s talk about what nobody wants to talk about. Disability. Everything about it seems to scream caution. Judgement. Legalities. Who really wants to be disabled? Who really wants to be limited by what their body can or cannot do? It just doesn’t make sense to speak disability upon yourself at the same time you’re claiming healing. But to some, it’s an answered prayer. My Story It took a year from my epidural for my health to spiral out of control. But I still remained too proud to admit that my body was not what…

  • close up of doctor crossing arms holding a red stethascope
    Chronic Illness

    Health Care Frustrations – How You Can Help

    So you’re sick. You’re feeling miserable, and your body is in so much pain that you think you might be dying. What do you do? If you’re like me, you’re thinking the ER might be your last hope. Of course, nobody ever wants to resort to going to the hospital, but when you’ve tried everything, and nothing is working, what choice do you have? Except, say you get there, and there’s nothing they can do. Let’s say you wait for hours in the ER, go through the hoops of IV’s and questions only to be told nothing is wrong with you – only to go home in the same exact…