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Living with Intracranial Hypertension
Have you been battling Intracranial Hypertension and the life-altering symptoms it causes? Don’t fight it alone. Let us be there for you. Which topic has been eating away at your mind? Are you struggling in your marriage? Are you having trouble working yet can’t afford to stay home? Are you wondering how to function and communicate while staying in the hospital? Have you even fully accepted yet what happened to you? Pick a topic and read away. Know you are not alone in this battle and that there is a purpose behind your pain. We are here for you. Relationships Parenting Working A Day in the Life Coping with an…
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The Way, The Truth, & The Lyme
The Testimony of Jessica Johnson Creatively Transcribed by April Normand When I say Lyme Disease, what is the first thing you think of? Ticks, no doubt. Want to know what I think of? The inability to walk. The feeling of cement in my legs. Being completely unable to move my neck. Inflammation within and behind my eyes that makes it too painful to even see. Spine shattering, gut damaging, life changing chronic illness. That’s what I think of. My Story My name is Jessica Johnson. I was born and raised in Jacksonville, Florida, a place of beaches, campgrounds, military, and shrimping. Where small town living meets the big city. The…
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Not by Sight
Oddly enough, Intracranial Hypertension supposedly can’t kill you. But *spoiler alert* it can make you go blind. When spinal fluid pressure begins to build, there aren’t very many places it can go. This leaves it to push on anything it possibly can, including the optic nerves of your eyes. This type of trauma to the optic nerves causes them to swell, leading to a condition known as papilledema. If left untreated, your vision typically only worsens with the possibility of eventually (or even suddenly) going blind. But God told me I would never go blind. He will come and save you. Then the eyes of the blind shall be opened,…
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All About Intracranial Hypertension
September is Intracranial Hypertension (Pseudotumor Cerebri) Awareness month! Learn all about this bizarre neurological condition, and help us spread awareness!
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A Day in the Life of Chronic Illness
6:30 am. It’s Groundhogs Day. Has it been two weeks or three weeks of dealing with this episode? I’ve lost track. But I get to wake up once again to the same problem that had me tossing and turning all night. How bad will it be today? That’s all I ever wonder. Will my medicine work right away? Will it all be gone by noon? Or maybe break by dinner? Just please don’t make me to go sleep with it again. Morning At least it’s morning. I can now take whatever medication that is supposed to help relieve the pressure. Please work. I put on my worship music to help…
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In Sickness & In Health
Do you know the scenes in movies where the person is being rushed through the hospital, and their loved one arrives just in time to find them? This is the exact image of what I remember in between my neurologist visit and passing out in the wheelchair on the way to the ER. My husband was there right when I needed him most. I might have been half conscious from the pain, but I will never forget how much love and concern he showed me through those days in the hospital. His support in helping me breathe and cope with every increase of pressure was enough to make me think…
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The Broken Body
Do you remember when your body broke? I do. Thursday, January 26, 2017. 9:30 am. It was the day I had my first child. It was the moment I had the epidural that went too far. Sure, that’s a common occurrence. Countless women experience it. The needle penetrates too far into the dura that surrounds the spinal cord and causes spinal fluid to leak out from around your brain. Excruciating headaches ensue. Sometimes the body heals itself before the new mother even notices. Other times, the skull crushing pain lingers for weeks or even months afterwards. The good news is doctors can fix this. All they have to do is…
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Postpartum Headaches & Backpain… Sound Familiar?
Had a baby and now experiencing symptoms you’ve never felt before? Believe me when I say there are a lot more women like you than you think! In January 2017, I gave birth to my first child. I had been healthy for 25 years prior. My pregnancy was uncomplicated and full term. My labor and delivery were brief and easy. But I didn’t know until four days later that there had been an accident with the epidural. While still in the hospital, I began experiencing headaches, something I had never dealt with much before. Upon arriving home, they were so excruciating, I couldn’t even think straight. My gynecologist instructed me…
