• sillhouette of woman spinning and running in field of morning sun
    Chronic Illness,  Spirit

    Count It All Joy

    Earlier this month, I had my second brain surgery. I’ll save the details for another post, but overall it went very well. One might even go as far as to say it was successful – I haven’t had any high pressure symptoms since. The recovery process on the other hand was a different story. While on the surface, all is technically going well, there’s still so much more to recovery that never seems to be seen or heard. Take the post-surgery depression for example. In all honesty, I don’t even want to call it that because I know how much worse it could truly be. There is just no doubt…

  • girl with shaved head in hospital bed making a peace sign with hand and holding phone
    Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery – Healing

    Apparently when my neurosurgery team told me, “If you feel anything at all, let us know.” They meant, “It can take even eight weeks before your body adjusts to the shunt.” So by three weeks post-surgery, I was back at the hospital once again begging for relief. As I stood hunched against the corner of the elevator trying to stretch out the pressure, who do you think was to enter the elevator that Friday morning but my neurologist – my God-sent angel – the only one who could ever convince my neurosurgeons to help me. And despite ridiculous feuds with my neurosurgery team that day, my shunt was adjusted and…

  • young woman post-surgery sitting and smiling with a shaved head
    Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery – Recovery

    I remember the moment I woke up in recovery and was told I just had shunt surgery. Part of me felt like I was still in and out of consciousness in the ER. Part of me thought I had passed out from the pain, and they had performed an emergency shunt surgery. Within a few minutes though, my husband and his sister were at my side, and I began to remember that it was all planned. Nurses came by to take bedside X-rays, and I rested, soaking in the new information that was now a part of my life: I had a shunt. I had a medical device inside of…

  • teal and green awareness ribbon
    Chronic Illness,  Intracranial Hypertension

    Living with Intracranial Hypertension

    Have you been battling Intracranial Hypertension and the life-altering symptoms it causes? Don’t fight it alone. Let us be there for you. Which topic has been eating away at your mind? Are you struggling in your marriage? Are you having trouble working yet can’t afford to stay home? Are you wondering how to function and communicate while staying in the hospital? Have you even fully accepted yet what happened to you? Pick a topic and read away. Know you are not alone in this battle and that there is a purpose behind your pain. We are here for you. Relationships Parenting Working A Day in the Life Coping with an…

  • Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery

    June 7, 2018 I laid on my side on the ER bed for the fifth time that year. My husband sat across from me. The anesthesiologist sat behind me. My pressure had once again been uncontrollable, and all medications had failed. It was time for yet another spinal tap. I honestly didn’t even care anymore. None of this was new, and nothing could possibly feel worse than what I was already feeling. I just wanted relief. As the physician inserted that 3 ½ inch needle, I did my best to breathe and pray, waiting for her to announce the opening pressure. Instead, she grabbed the extension. The next sound within…