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  • My Story
  • About
    • What Is Intracranial Hypertension?
  • Contact

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  • Intracranial Hypertension
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  • a sculpture of a head with the brain exposed and labeled in a vintage style
    Chronic Illness,  Intracranial Hypertension

    The Emotional & Mental Toll of Chronic Illness

    September 3, 2024 /

    To help bring some awareness as to what it’s like living with a chronic illness (and a rare disease at that), let me just start off by...

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    top of a white hospital building with black windows and blue skies

    Hospital Tips

    June 19, 2019
    minimalist white desk with modern chair facing a white wall

    Where to Begin

    October 30, 2019
    young woman post-surgery sitting and smiling with a shaved head

    My Shunt Surgery – Recovery

    September 9, 2020
  • sillhouette of woman spinning and running in field of morning sun
    Chronic Illness,  Spirit

    Count It All Joy

    July 27, 2021 /

    Earlier this month, I had my second brain surgery. I’ll save the details for another post, but overall it went very well. One might even go as far as to say it was successful – I haven’t had any high pressure symptoms since. The recovery process on the other hand was a different story. While on the surface, all is technically going well, there’s still so much more to recovery that never seems to be seen or heard. Take the post-surgery depression for example. In all honesty, I don’t even want to call it that because I know how much worse it could truly be. There is just no doubt…

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    close up of a handicapped parking space

    The Five Lies of Disability – Breaking the Stigma

    November 6, 2019
    young woman post-surgery sitting and smiling with a shaved head

    My Shunt Surgery – Recovery

    September 9, 2020
    hands pulling on nitrile gloves

    What to Expect During Your First Spinal Tap

    April 20, 2022
  • Chronic Illness

    The Truth About Medical Trauma

    December 16, 2020 /

    ⊗ Trigger Warning: The following post discusses Medical PTSD & Trauma. Please proceed with caution. “I can shake off everything as I write; my sorrows disappear, my courage is reborn.” – Anne Frank There are many reasons I write. Outside of it being my calling, writing can be incredibly therapeutic. Like seeing a therapist, it brings clarity to the situations in my life. Oftentimes, it can feel as if bees are swarming around in my mind. I can’t think straight, and speaking is almost completely out of the question. But writing allows for these “bees” to fly out one at a time and land on each page accordingly. It allows…

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    girl with shaved head in hospital bed making a peace sign with hand and holding phone

    My Shunt Surgery – Healing

    September 23, 2020
    hand writing a to do list of checkboxes in a notebook with a pen

    The Chronic Illness Game Plan – How to Stay Prepared

    July 17, 2019
    girl in white and black striped shirt lying face flat on bed with blonde hair covering face

    Eight Survival Tips for the Isolated, by the Isolated

    March 25, 2020
  • teal and green awareness ribbon
    Chronic Illness,  Intracranial Hypertension

    Living with Intracranial Hypertension

    September 9, 2020 /

    Have you been battling Intracranial Hypertension and the life-altering symptoms it causes? Don’t fight it alone. Let us be there for you. Which topic has been eating away at your mind? Are you struggling in your marriage? Are you having trouble working yet can’t afford to stay home? Are you wondering how to function and communicate while staying in the hospital? Have you even fully accepted yet what happened to you? Pick a topic and read away. Know you are not alone in this battle and that there is a purpose behind your pain. We are here for you. Relationships Parenting Working A Day in the Life Coping with an…

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    streetlight at night

    Sleepless Nights

    July 24, 2019
    close up of a handicapped parking space

    The Five Lies of Disability – Breaking the Stigma

    November 6, 2019
    close up of holding pen writing on paper with a notebook and cup of coffee

    Calling In Sick

    May 29, 2019

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  • What Must I Do?
  • My Auditory & Vestibular Experience (Continued)
  • The Emotional & Mental Toll of Chronic Illness

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