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  • My Story
  • About
    • What Is Intracranial Hypertension?
  • Contact

What’s On Your Mind?

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  • Intracranial Hypertension
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  • Writer's Life
  • a sculpture of a head with the brain exposed and labeled in a vintage style
    Chronic Illness,  Intracranial Hypertension

    The Emotional & Mental Toll of Chronic Illness

    September 3, 2024 /

    To help bring some awareness as to what it’s like living with a chronic illness (and a rare disease at that), let me just start off by...

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    IV bag of fluids hanging from stand

    The Broken Body

    May 22, 2019
    girl in white and black striped shirt lying face flat on bed with blonde hair covering face

    Eight Survival Tips for the Isolated, by the Isolated

    March 25, 2020
    black and white photo of girl with shaved head wearing a hospital gown taking a selfie in a mirror

    What We Wish You Knew

    October 19, 2020
  • sillhouette of woman spinning and running in field of morning sun
    Chronic Illness,  Spirit

    Count It All Joy

    July 27, 2021 /

    Earlier this month, I had my second brain surgery. I’ll save the details for another post, but overall it went very well. One might even go as far as to say it was successful – I haven’t had any high pressure symptoms since. The recovery process on the other hand was a different story. While on the surface, all is technically going well, there’s still so much more to recovery that never seems to be seen or heard. Take the post-surgery depression for example. In all honesty, I don’t even want to call it that because I know how much worse it could truly be. There is just no doubt…

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    unfocused black and white blurry photo of people in a room

    My IH Journey – The Vestibular Experience

    September 3, 2024
    back of woman's head lying on side with dark hair and earring

    The Auditory Symptoms of Intracranial Hypertension

    January 7, 2021
    teal and green awareness ribbon

    All About Intracranial Hypertension

    September 4, 2019
  • Chronic Illness

    The Truth About Medical Trauma

    December 16, 2020 /

    ⊗ Trigger Warning: The following post discusses Medical PTSD & Trauma. Please proceed with caution. “I can shake off everything as I write; my sorrows disappear, my courage is reborn.” – Anne Frank There are many reasons I write. Outside of it being my calling, writing can be incredibly therapeutic. Like seeing a therapist, it brings clarity to the situations in my life. Oftentimes, it can feel as if bees are swarming around in my mind. I can’t think straight, and speaking is almost completely out of the question. But writing allows for these “bees” to fly out one at a time and land on each page accordingly. It allows…

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    hands holding white and yellow flower by green and yellow bush

    Embracing the Thorn in My Flesh

    April 20, 2022
    mother holding newborn baby

    Postpartum Headaches & Backpain… Sound Familiar?

    May 1, 2019
    young woman post-surgery sitting and smiling with a shaved head

    My Shunt Surgery – Recovery

    September 9, 2020
  • teal and green awareness ribbon
    Chronic Illness,  Intracranial Hypertension

    Living with Intracranial Hypertension

    September 9, 2020 /

    Have you been battling Intracranial Hypertension and the life-altering symptoms it causes? Don’t fight it alone. Let us be there for you. Which topic has been eating away at your mind? Are you struggling in your marriage? Are you having trouble working yet can’t afford to stay home? Are you wondering how to function and communicate while staying in the hospital? Have you even fully accepted yet what happened to you? Pick a topic and read away. Know you are not alone in this battle and that there is a purpose behind your pain. We are here for you. Relationships Parenting Working A Day in the Life Coping with an…

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    girl with shaved head in hospital bed making a peace sign with hand and holding phone

    My Shunt Surgery – Healing

    September 23, 2020
    greyscale of longhaired woman covering up mouth with hand and sweater

    What Are You Afraid Of?

    December 18, 2019
    young woman post-surgery sitting and smiling with a shaved head

    My Shunt Surgery – Recovery

    September 9, 2020

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