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  • My Story
  • About
    • What Is Intracranial Hypertension?
  • Contact

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  • Intracranial Hypertension
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  • a sculpture of a head with the brain exposed and labeled in a vintage style
    Chronic Illness,  Intracranial Hypertension

    The Emotional & Mental Toll of Chronic Illness

    September 3, 2024 /

    To help bring some awareness as to what it’s like living with a chronic illness (and a rare disease at that), let me just start off by...

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    young woman post-surgery sitting and smiling with a shaved head

    My Shunt Surgery – Recovery

    September 9, 2020
    teal and green awareness ribbon

    Living with Intracranial Hypertension

    September 9, 2020
    girl in white and black striped shirt lying face flat on bed with blonde hair covering face

    Eight Survival Tips for the Isolated, by the Isolated

    March 25, 2020
  • sillhouette of woman spinning and running in field of morning sun
    Chronic Illness,  Spirit

    Count It All Joy

    July 27, 2021 /

    Earlier this month, I had my second brain surgery. I’ll save the details for another post, but overall it went very well. One might even go as far as to say it was successful – I haven’t had any high pressure symptoms since. The recovery process on the other hand was a different story. While on the surface, all is technically going well, there’s still so much more to recovery that never seems to be seen or heard. Take the post-surgery depression for example. In all honesty, I don’t even want to call it that because I know how much worse it could truly be. There is just no doubt…

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    greyscale of back of womans head and shoulders hunched over

    Depression

    December 18, 2019
    husband standing next to wife in hospital bed

    In Sickness & In Health

    June 12, 2019
    close up of glass test tubes with lime green liquid

    What is Lyme Disease?

    May 6, 2020
  • Chronic Illness

    The Truth About Medical Trauma

    December 16, 2020 /

    ⊗ Trigger Warning: The following post discusses Medical PTSD & Trauma. Please proceed with caution. “I can shake off everything as I write; my sorrows disappear, my courage is reborn.” – Anne Frank There are many reasons I write. Outside of it being my calling, writing can be incredibly therapeutic. Like seeing a therapist, it brings clarity to the situations in my life. Oftentimes, it can feel as if bees are swarming around in my mind. I can’t think straight, and speaking is almost completely out of the question. But writing allows for these “bees” to fly out one at a time and land on each page accordingly. It allows…

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    close up of a handicapped parking space

    The Five Lies of Disability – Breaking the Stigma

    November 6, 2019
    mother holding newborn baby

    Postpartum Headaches & Backpain… Sound Familiar?

    May 1, 2019

    By His Stripes, I Am Healed

    November 25, 2020
  • teal and green awareness ribbon
    Chronic Illness,  Intracranial Hypertension

    Living with Intracranial Hypertension

    September 9, 2020 /

    Have you been battling Intracranial Hypertension and the life-altering symptoms it causes? Don’t fight it alone. Let us be there for you. Which topic has been eating away at your mind? Are you struggling in your marriage? Are you having trouble working yet can’t afford to stay home? Are you wondering how to function and communicate while staying in the hospital? Have you even fully accepted yet what happened to you? Pick a topic and read away. Know you are not alone in this battle and that there is a purpose behind your pain. We are here for you. Relationships Parenting Working A Day in the Life Coping with an…

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    black and white of mother holding and comforting aby on rocking chair

    Mommy’s Sick

    July 10, 2019
    black and white of woman standing with hair blowing and covering up face

    “But You Don’t Look Sick.”

    May 15, 2019
    close up of glass test tubes with lime green liquid

    What is Lyme Disease?

    May 6, 2020

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