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  • About
    • What Is Intracranial Hypertension?
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  • Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery

    September 2, 2020 /

    June 7, 2018 I laid on my side on the ER bed for the fifth time that year. My husband sat across from me. The anesthesiologist sat behind me. My pressure had once again been uncontrollable, and all medications had failed. It was time for yet another spinal tap. I honestly didn’t even care anymore. None of this was new, and nothing could possibly feel worse than what I was already feeling. I just wanted relief. As the physician inserted that 3 ½ inch needle, I did my best to breathe and pray, waiting for her to announce the opening pressure. Instead, she grabbed the extension. The next sound within…

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    Chronic Illness,  Intracranial Hypertension

    What is Intracranial Hypertension – Pseudotumor Cerebri?

    September 1, 2020 /

    (video below) Intracranial Hypertension is a rare neurological condition in which spinal fluid pressure increases around the brain and spinal cord, often times for no reason whatsoever. This condition also goes by the name pseudo-tumor cerebri, meaning “false brain tumor”, because the symptoms often mimic that of a brain tumor. Symptoms Include: Headache Fullness or pressure in head Nausea Vomiting Dizziness Balance Issues Back Pain Jaw Pain Neck stiffness & pain Whooshing noise in ears (Pulsatile Tinnitus) Auditory changes Ear Fullness Vision changes Pain when looking to the side Papilledema  (swelling of the optic nerve) Vision loss What It Feels Like: Like thick caulk is filling up your head and…

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    Body,  Chronic Illness,  Intracranial Hypertension

    Why Weight Loss Matters

    October 23, 2019 /

    How has weight affected your Intracranial Hypertension? No doubt, one of the first things your doctor suggested upon diagnosis was to lose weight. Why? While the medical field is still trying to figure out exactly what causes IH, there seems to be a high percentage of patients with IH who are overweight or obese. In fact, many patients develop this condition after or during a period of significant weight gain. As obesity rates increase, Intracranial Hypertension is being found to be less and less rare. But it’s not just about the weight loss. What’s Causing the Weight? While aiming for a healthy weight in general is always important, doctors will…

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    Chronic Illness,  Intracranial Hypertension

    All About Intracranial Hypertension

    September 4, 2019 /

    September is Intracranial Hypertension (Pseudotumor Cerebri) Awareness month! Learn all about this bizarre neurological condition, and help us spread awareness!

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