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  • About
    • What Is Intracranial Hypertension?
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    Chronic Illness,  Spirit

    Count It All Joy

    July 27, 2021 /

    Earlier this month, I had my second brain surgery. I’ll save the details for another post, but overall it went very well. One might even go as far as to say it was successful – I haven’t had any high pressure symptoms since. The recovery process on the other hand was a different story. While on the surface, all is technically going well, there’s still so much more to recovery that never seems to be seen or heard. Take the post-surgery depression for example. In all honesty, I don’t even want to call it that because I know how much worse it could truly be. There is just no doubt…

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    Intracranial Hypertension

    Surgical Options for Intracranial Hypertension

    June 14, 2021 /

    For those of us living with Intracranial Hypertension, it can be frustrating to hear time and time again that there is no cure. And though it is true that nothing has been invented specifically to treat IIH, we do have options in how we can manage this bizarre and painful condition. While many may find relief from medication or even natural remedies, others find hope through surgery. Now before we begin discussing the surgical options for IH, I would like to make it clear that I have only undergone one of these surgeries. Still, I feel it is important to provide all the information I can in regards to managing…

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    All About Intracranial Hypertension

    September 4, 2019
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    My Auditory & Vestibular Experience (Continued)

    September 3, 2024
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  • girl with shaved head in hospital bed making a peace sign with hand and holding phone
    Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery – Healing

    September 23, 2020 /

    Apparently when my neurosurgery team told me, “If you feel anything at all, let us know.” They meant, “It can take even eight weeks before your body adjusts to the shunt.” So by three weeks post-surgery, I was back at the hospital once again begging for relief. As I stood hunched against the corner of the elevator trying to stretch out the pressure, who do you think was to enter the elevator that Friday morning but my neurologist – my God-sent angel – the only one who could ever convince my neurosurgeons to help me. And despite ridiculous feuds with my neurosurgery team that day, my shunt was adjusted and…

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    What to Expect During Your First Spinal Tap

    April 20, 2022
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    My IH Journey – The Auditory Experience

    September 3, 2024
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    The Chronic Illness Game Plan – How to Stay Prepared

    July 17, 2019
  • young woman post-surgery sitting and smiling with a shaved head
    Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery – Recovery

    September 9, 2020 /

    I remember the moment I woke up in recovery and was told I just had shunt surgery. Part of me felt like I was still in and out of consciousness in the ER. Part of me thought I had passed out from the pain, and they had performed an emergency shunt surgery. Within a few minutes though, my husband and his sister were at my side, and I began to remember that it was all planned. Nurses came by to take bedside X-rays, and I rested, soaking in the new information that was now a part of my life: I had a shunt. I had a medical device inside of…

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    May 6, 2020
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    Claiming Thankfulness

    November 27, 2019

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    August 20, 2019
  • Chronic Illness,  Intracranial Hypertension

    My Shunt Surgery

    September 2, 2020 /

    June 7, 2018 I laid on my side on the ER bed for the fifth time that year. My husband sat across from me. The anesthesiologist sat behind me. My pressure had once again been uncontrollable, and all medications had failed. It was time for yet another spinal tap. I honestly didn’t even care anymore. None of this was new, and nothing could possibly feel worse than what I was already feeling. I just wanted relief. As the physician inserted that 3 ½ inch needle, I did my best to breathe and pray, waiting for her to announce the opening pressure. Instead, she grabbed the extension. The next sound within…

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    Where to Begin

    October 30, 2019
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    Health Care Frustrations – How You Can Help

    October 30, 2019
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    A Day in the Life of Chronic Illness

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    Chronic Illness,  Intracranial Hypertension

    All About VP Shunt Surgery

    September 2, 2020 /

    *** Disclaimer: I am not a doctor. I am not a medical professional. All medical information is based off of personal experience only. If you are experiencing a medical issue or emergency, please seek a health professional first and foremost. *** What is a VP Shunt? A VP Shunt is a medical device used to help divert excess spinal fluid from around the brain into the abdomen where it can be reabsorbed. To get a bit more technical, VP is short for “Ventriculo-Peritoneal”. The shunt is inserted into the “ventricles” or cavities of the brain where the CSF (cerebral-spinal fluid) is then transferred to the “peritoneal” (abdominal) region of the…

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